EVERYLIFE FOUNDATION FOR RARE DISEASES
EVERYLIFE FOUNDATION FOR RARE DISEASES is named as the registrant in 1 lobbying report we hold for 2026-Q2, for 1 client. 0 reports of 1 compared with the due date were posted after it.
Clients and amounts
A lobbying report states the registrant's income from the client (a lobbying firm) or its own lobbying expenses (an organization lobbying for itself), for the whole quarter and every issue together. A report of less than $5,000, or of no lobbying activity, states no figure. It is not the amount spent on one bill.
| Client | Amount the report states, by quarter | Reports |
|---|---|---|
| EVERYLIFE FOUNDATION FOR RARE DISEASESThe registrant lobbying for itself | 2026-Q2: $40,000 in its own lobbying expenses | 1 |
Lobbyists named in these reports
- DYLAN SIMON · 1 report
- JAMIE SULLIVAN · 1 report
Bills named, and how the House and the Senate voted
7 bills named in these reports. None of them became law in our record, so no recorded vote is shown. A lobbying report names the houses of Congress and the agencies the lobbyists contacted. It does not say which members or staff they met.
| Bill | Status | How the House and the Senate voted |
|---|---|---|
| H.R. 1414Cameron’s Law | Introduced | No recorded vote in our record |
| H.R. 1532Scientific EXPERT Act of 2025 | Introduced | No recorded vote in our record |
| H.R. 4709Newborn Screening Saves Lives Reauthorization Act of 2025 | Introduced | No recorded vote in our record |
| H.R. 5509Safe Step Act | Introduced | No recorded vote in our record |
| H.R. 7118Genomic Answers for Children’s Health Act of 2026 | Introduced | No recorded vote in our record |
| S. 822Scientific EXPERT Act of 2025 | Introduced | No recorded vote in our record |
| S. 2903Safe Step Act | Introduced | No recorded vote in our record |
Issues named: Health Issues (1).
Every report
| Client | Kind, as filed | Posted | Report |
|---|---|---|---|
| EVERYLIFE FOUNDATION FOR RARE DISEASESHealth Issues | 2nd Quarter - Report | The report on LDA.gov |
Campaign gifts this registrant reported
Lobbyists and registrants report their political contributions twice a year (form LD-203). We hold these reports only for contributions to the campaign committees of members who sponsored or cosponsored a bill named in a lobbying report. Any other contribution: Not checked yet.
No contribution report we hold lists a gift from this filer.
Where this comes from
Lobbying Disclosure Act reports (LD-2), LDA.gov. We save our own copy of each page of LDA.gov's list of reports before we read it. These pages were built from our copies on .
2026-Q2: every page of LDA.gov's list saved and read.
A lobbying report states the registrant's income from the client (a lobbying firm) or its own lobbying expenses (an organization lobbying for itself), for the whole quarter and every issue together. A report of less than $5,000, or of no lobbying activity, states no figure. It is not the amount spent on one bill.
Senate Office of Public Records cannot vouch for the data or analyses derived from these data after the data have been retrieved from LDA.gov.